How it all started
On 25th September 2005, Kelvin and Mandy Curtis lost their eldest daughter, Erin, to Acute Lymphoblastic Leukaemia, she was just 15 years old. Kelvin and Mandy decided to raise money to help, but weren’t too sure which direction to go in.
In 2007 the Leukaemia Foundation's Light the Night was being advertised so Kelvin and Mandy thought they could do something for this charity, as the Leukaemia Foundation helped them when they were in need. Now, Kelvin and Mandy both love music and know how to throw a party, so the idea of a Woodstock style of festival came to mind and as they live in the Naas Valley – ‘Naasstock’ seemed to be a fitting name. This was the birth of Naasstock, they raised $7,000 for the Leukaemia Foundation.
2 years later, they wanted to do it all again, so in 2009 they decided to raise funds for the Sydney Children's Hospital Foundation, Research into Children's Cancer and Blood Disorders, for which Erin's oncologist Professor Glen Marshall is the head of research – this time they raised $15,000. In 2010 Mandy was asked to host a tea and cake stall at an Open Garden Day at a friend’s property, 'Lambrigg' in Tharwa with all profits to be donated to a charity of Mandy and Kelvin’s choice. $4000 was raised from tea and cake!
Another Naasstock was held in 2011, this time Kelvin and Mandy had help with the organising, so the Naasstock Committee was put together. Naasstock 2011 raised $23,050 for the Sydney Children's Hospital Foundation, Research into Children's Cancer and Blood Disorders. In 2012 Naasstock IEM was created – IEM stands for In Erin’s Memory. 2013 raised an amazing $41,335.00 with all money being donated to the newly renamed Kid’s Cancer Centre.
Naasstock IEM 2015 raised an amazing $50,015, which helps the Kid’s Cancer Centre continue the ongoing trials of a new treatment for children diagnosed with Acute Lymphoblastic Leukaemia.
With the help from the committee and sponsors Naasstock IEM 2017 raised $63,500.
The funds raised from Naasstock IEM is being used to fund the ongoing trial of a new treatment for children who have relapsed after receiving chemotherapy for Acute Lymphoblastic Leukaemia. This drug holds great promise to put the child’s leukaemia back into remission and is giving new hope to families. Both Adults and children will benefit from this research.
Between Naasstock, Naasstock IEM and various smaller fundraiser, Kelvin and Mandy have donated over $200,000 to Sydney Children's Hospital Foundation, Research into Children's Cancer and Blood Disorders and the Kid’s Cancer Centre in Erin’s memory.
Acute lymphoblastic leukaemia is the most common child cancer. 20% of children will relapse despite the best chemotherapy.We are trying to fund a trial of a new treatment identified by doctors & scientists at Children’s Cancer Institute Australia and Kids Cancer Centre at Sydney Children’s Hospital. This drug combines a leukaemia cell poison with an antibody to target the poison specifically to the leukaemia cells and holds great promise as a way of putting the child’s leukaemia back in remission.The funds raised by Naasstock will be used to help us fund both the costs of the drug and the conduct of the trial itself.
On behalf of the children we treat I would like to thank Mandy and her committee.
Glenn Marshall, MB, BS, MD, FRACP
Paediatric Haematologist/Oncologist & Director, Kids Cancer Centre - Sydney Children’s Hospital | Professor of Paediatrics - University of NSW | Head, Molecular Carcinogenesis Program & Translational Research - Children’s Cancer Institute Australia | Director, Kids Cancer Alliance - Cancer Institute NSW
Kids Cancer Centre, Sydney Children’s Hospital, Randwick